Aalfs, C. M., Oort, F. J., de Haes, H. C., Leschot, N. J., & Smets, E. M.
A. (2006). Counselor–counselee interaction in reproductive ge- netic counseling: Does a pregnancy in the counselee make a dif- ference? Patient Education & Counseling, 60(1), 80–90. https://doi. org/10.1016/j.pec.2005.03.007
Aktan-Collan, K., Haukkala, A., Mecklin, J. P., Uutela, A., & Kääriäinen, H. (2001). Psychological consequences of predictive genetic test- ing for hereditary non-polyposis colorectal cancer (HNPCC): A prospective follow-up study. International Journal of Cancer, 93(4), 608–611. https://doi.org/10.1002/ijc.1372
Arning, L., Witt, C. N., Epplen, J. T., & Stemmler, S. (2015). Genetic coun- selling for predictive testing in Huntington’s disease in one centre since 1993. Gender-specific aspects of decision-making. Journal of Huntington's Disease, 4(1), 87–98.
Bito, S., Matsumura, S., Singer, M. K., Meredith, L. S., Fukuhara, S., & Wenger, N. S. (2007). Acculturation and end-of-life de- cision making: Comparison of Japanese and Japanese- American focus groups. Bioethics, 21(5), 251–262. https://doi. org/10.1111/j.1467-8519.2007.00551.x
Braun, V., & Clarke, V. (2006). Using thematic analysis in psychol- ogy. Qualitative Research in Psychology, 3(2), 77–101. https://doi. org/10.1191/1478088706qp063oa
Campacci, N., Campos Reis Galvão, H., Garcia, L. F., Ribeiro, P. C., Grasel, R. S., Goldim, J. R., Ashton-Prolla, P., & Palmero, E. I. (2020). Genetic cancer risk assessment: A screenshot of the psychosocial profile of women at risk for hereditary breast and ovarian cancer syndrome. Psychooncology, 29(4), 681–687. https://doi.org/10.1002/pon.5305 Cené, C. W., Haymore, L. B., Lin, F.-C., Laux, J., Jones, C. D., Wu, J.-R., DeWalt, D., Pignone, M., & Corbie-Smith, G. (2015). Family member accompaniment to routine medical visits is associated with bet-ter self-care in heart failure patients. Chronic Illness, 11(1), 21–32. https://doi.org/10.1177/1742395314532142
Central Social Insurance Medical Council (2020). Revision of medical fees. https://www.mhlw.go.jp/content/12404000/000601838.pdf Cohen, S. A., Marvin, M. L., Riley, B. D., Vig, H. S., Rousseau, J. A., & Gustafson, S. L. (2013). Identification of genetic counseling ser- vice delivery models in practice: A report from the NSGC Service Delivery Model Task Force. Journal of Genetic Counseling, 22(4), 411–421. https://doi.org/10.1007/s10897-013-9588-0
Davies, R. J., & Osamu, I. (2002). The Japanese mind: Understanding con- temporary Japanese culture. Tuttle Publishing.
Dean, M., Scherr, C. L., Clements, M., Koruo, R., Martinez, J., & Ross, A. (2017). “When information is not enough”: A model for understand- ing BRCA-positive previvors’ information needs regarding heredi- tary breast and ovarian cancer risk. Patient Education and Counseling, 100(9), 1738–1743. https://doi.org/10.1016/j.pec.2017.03.013
Di Pietro, M. L., Zaçe, D., Orfino, A., Di Raimo, F. R., Poscia, A., De Matteis, E., Turchetti, D., Godino, L., Bertonazzi, B., Franiuk, M., Bruzzone, C., Varesco, L., Lucci-Cordisco, E., & Genuardi, M. (2020). Intrafamilial communication of hereditary breast and ovarian can- cer genetic information in Italian women: Towards a personalised approach. European Journal of Human Genetics, 29(2), 250–261. https://doi.org/10.1038/s41431-020-00733-5
Donahue, R. T. (1998). Japanese culture and communication: Critical cul- tural analysis. University Press of America.
Duronto, P. M., Nishida, T., & Nakayama, S. (2005). Uncertainty, anxi- ety, and avoidance in communication with strangers. International Journal of Intercultural Relations, 29(5), 549–560. https://doi. org/10.1016/j.ijintrel.2005.08.003
Eijzenga, W., Aaronson, N. K., Hahn, D. E. E., Sidharta, G. N., van der Kolk, L. E., Velthuizen, M. E., Ausems, M. G. E. M., & Bleiker, E. M. A. (2014). Effect of routine assessment of specific psychosocial prob- lems on personalized communication, counselors’ awareness, and distress levels in cancer genetic counseling practice: A randomized controlled trial. Journal of Clinical Oncology, 32(27), 2998–3004. https://doi.org/10.1200/JCO.2014.55.4576
Eijzenga, W., Bleiker, E. M. A., Hahn, D. E. E., Kluijt, I., Sidharta, G. N., Gundy, C., & Aaronson, N. K. (2014). Psychosocial aspects of hered- itary cancer (PAHC) questionnaire: Development and testing of a screening questionnaire for use in clinical cancer genetics. Psycho- Oncology, 23(8), 862–869. https://doi.org/10.1002/pon.3485
Eijzenga, W., Bleiker, E. M. A., Hahn, D. E. E., Van der Kolk, L. E., Sidharta, G. N., & Aaronson, N. K. (2015). Prevalence and detection of psy- chosocial problems in cancer genetic counseling. Familial Cancer, 14(4), 629–636. https://doi.org/10.1007/s10689-015-9809-9
Ellingson, L. L. (2002). The roles of companions in geriatric patient– interdisciplinary oncology team interactions. Journal of Aging Studies, 16, 361–382. https://doi.org/10.1016/S0890-4065(02)00071-3
Ellington, L., Roter, D., Dudley, W. N., Baty, B. J., Upchurch, R., Larson, S., Wylie, J. E., Smith, K. R., & Botkin, J. R. (2005). Communication analysis of BRCA1 genetic counseling. Journal of Genetic Counseling, 14(5), 377–386. https://doi.org/10.1007/s10897-005-3660-3
Erikson, E. H. (1998). The life cycle completed. W. W. Norton & Company. Geirdal, A. Ø., & Dahl, A. A. (2008). The relationship between psycholog- ical distress and personality in women from families with familial breast/ovarian or hereditary non-polyposis colorectal cancer in the absence of demonstrated mutations. Journal of Genetic Counseling, 17(4), 384–393. https://doi.org/10.1007/s10897-008-9159-y Gilbar, R., & Barnoy, S. (2018). Companions or patients? The impact of family presence in genetic consultations for inherited breast can- cer: Relational autonomy in practice. Bioethics, 32(6), 378–387. https://doi.org/10.1111/bioe.12448
Glasser, M., Prohaska, T. R., & Gravdal, J. (2001). Elderly patients and their accompanying caregivers on medical visits. Research on Aging, 23(3), 326–348. https://doi.org/10.1177/0164027501233003
Green, J., Richards, M., Murton, F., Statham, H., & Hallowell, N. (1997). Family communication and genetic counseling: The case of hered- itary breast and ovarian cancer. Journal of Genetic Counseling, 6(1), 45–60. https://doi.org/10.1023/A:1025611818643
Greenberg, S. E., Boothe, E., Delaney, C. L., Noss, R., & Cohen, S. A. (2020). Genetic counseling service delivery models in the United States: Assessment of changes in use from 2010 to 2017. Journal of Genetic Counseling, 29(6), 1126–1141. https://doi.org/10.1002/ jgc4.1265
Griswold, C. M., Ashley, S. S., Dixon, S. D., & Scott, J. L. (2011). Genetic counselors’ experiences with adolescent patients in prenatal ge- netic counseling. Journal of Genetic Counseling, 20(2), 178–191. https://doi.org/10.1007/s10897-010-9338-5
Guan, Y., Roter, D. L., Erby, L. H., Wolff, J. L., Gitlin, L. N., Roberts, J. S., Green, R. C., & Christensen, K. D. (2017). Disclosing genetic risk of Alzheimer’s disease to cognitively impaired patients and visit companions: Findings from the REVEAL Study. Patient Education and Counseling, 100(5), 927–935. https://doi.org/10.1016/j. pec.2016.12.005
Guan, Y., Roter, D. L., Wolff, J. L., Gitlin, L. N., Christensen, K. D., Roberts, J. S., Green, R. C., & Erby, L. H. (2018). The impact of genetic counselors’ use of facilitative strategies on cognitive and emo- tional processing of genetic risk disclosure for Alzheimer’s disease. Patient Education and Counseling, 101(5), 817–823. https://doi. org/10.1016/j.pec.2017.11.019
Guidebook for diagnosis and treatment of hereditary breast and ovarian can- cer syndrome (2017). http://johboc.jp/guidebook2017/toc/2-1inde x/cq1/
Hall, E., & Hall, M. (1990). Understanding cultural differences: Germans, French and Americans. Intercultural Press.
Havighurst, R. J. (1953). Human development and education. Longmans. Hodgson, J. M., Gillam, L. H., Sahhar, M. A., & Metcalfe, S. A. (2010).‘Testing times, challenging choices’: An Australian study of prena- tal genetic counseling. Journal of Genetic Counseling, 19(1), 22–37. https://doi.org/10.1007/s10897-009-9248-6
Ibisler, A., Ocklenburg, S., Stemmler, S., Arning, L., Epplen, J. T., Saft, C., & Hoffjan, S. (2017). Prospective evaluation of predictive DNA testing for Huntington’s disease in a large German center. Journal of Genetic Counseling, 26(5), 1029–1040. https://doi.org/10.1007/ s10897-017-0085-8
Ishii, S. (1984). Enryo-sasshi communication: A key to understanding Japanese interpersonal relations. Cross Currents, 11(1), 49–58.
Ishikawa, H., & Yamazaki, Y. (2005). How applicable are western mod-els of patient–physician relationship in Asia?: Changing patient– physician relationship in contemporary Japan. International Journal of Japanese Sociology, 14(1), 84–93. https://doi. org/10.1111/j.1475-6781.2005.00070.x
Kosugi, S. (2019). Proposal concerning the information transmission process in genomic medicine. Part 1: Focusing on comprehensive tumor ge- nomic profiling analysis (revised 2nd ed.). https://www.amed.go.jp/ content/000064662.pdf
Lea, D. H., Johnson, J. L., Ellingwood, S., Allan, W., Patel, A., & Smith, R. (2005). Telegenetics in Maine: Successful clinical and educa- tional service delivery model developed from a 3-year pilot proj- ect. Genetics in Medicine, 7(1), 21–27. https://doi.org/10.1097/01. gim.0000151150.20570.e7
Mahon, S. M. (2020). Telegenetics: Remote counseling during the COVID-19 pandemic. Clinical Journal of Oncology Nursing, 24(3), 244–248. https://doi.org/10.1188/20.CJON.244-248
Mellon, S., Gold, R., Janisse, J., Cichon, M., Tainsky, M. A., Simon, M. S., & Lorczak, J. (2008). Risk perception and cancer worries in families at increased risk of familial breast/ovarian cancer. Psychooncology, 17(8), 756–766. https://doi.org/10.1002/pon.1370
Miike, Y. (2002). Theorizing culture and communication in the Asian context: An assumptive foundation. Intercultural Communication Studies, 11, 1–21.
Okano, M., Nomizu, T., Tachibana, K., Nagatsuka, M., Matsuzaki, M., Katagata, N., Ohtake, T., Yokoyama, S., Arai, M., & Nakamura, S. (2020). The relationship between BRCA-associated breast cancer and age factors: An analysis of the Japanese HBOC consortium database. Journal of Human Genetics, 66(3), 307–314. https://doi. org/10.1038/s10038-020-00849-y
Palmero, E. I., Campacci, N., Schüler-Faccini, L., Giugliani, R., Casali da Rocha, J. C., Vargas, F. R., & Ashton-Prolla, P. (2020). Cancer-related worry and risk perception in Brazilian individ- uals seeking genetic counseling for hereditary breast cancer. Genetics and Molecular Biology, 43(2), e20190097. https://doi. org/10.1590/1678-4685-gmb-2019-0097
Petersen, A. H., Aagaard, M. M., Nielsen, H. R., Steffensen, K. D., Waldstrøm, M., & Bojesen, A. (2016). Post-mortem testing; germline BRCA1/2 variant detection using archival FFPE non-tumor tissue. A new paradigm in genetic counseling. European Journal of Human Genetics, 24(8), 1104–1111. https://doi.org/10.1038/ejhg.2015.268 Phelps, C., Bennett, P., Jones, H., Hood, K., Brain, K., & Murray, A. (2010). The development of a cancer genetic-specific measure of coping: The GRACE. Psycho-Oncology, 19(8), 847–854. https://doi. org/10.1002/pon.1629
Postolica, R., Lorga, M., Petrariu, F. D., & Azoicai, D. (2017). Cognitive- behavioral coping, illness perception, and family adaptabil- ity in oncological patients with a family history of cancer. BioMed Research International, 2017, 8104397. https://doi. org/10.1155/2017/8104397
Reid, V., Barnes, E., & Daly, L. (2002). Information sessions for outpatients referred to a hospital Nutrition and Dietetic Service for cholesterol lowering advice. Journal of Human Nutrition and Dietetics, 15(4), 281–286. https://doi.org/10.1046/j.1365-277x.2002.00371.x
Ruhnke, G. W., Wilson, S. R., Akamatsu, T., Kinoue, T., Takashima, Y., Goldstein, M. K., Koenig, B. A., Hornberger, J. C., & Raffin, T. A. (2000). Ethical decision making and patient autonomy: A compari- son of physicians and patients in Japan and the United States. Chest, 118(4), 1172–1182. https://doi.org/10.1378/chest.118.4.1172
Schilling, L. M., Scatena, L., Steiner, J. F., Albertson, G. A., Lin, C. T., Cyran, L., Ware, L., & Anderson, R. J. (2002). The third person in the room: Frequency, role, and influence of companions during primary care medical encounters. Journal of Family Practice, 51(8), 685–690.
Sharp, R. J., & Hobson, J. (2016). Patient and physician views of accom- panied consultations in occupational health. Occupational Medicine, 66(8), 643–648. https://doi.org/10.1093/occmed/kqw097
Uhlmann, W. R., Schuette, J. L., & Yahar, B. (Eds.) (2009). A guide to genetic counseling (2nd ed.). John Wiley & Sons.
Veyseh, M., Ricker, C., Espenschied, C., Raymond, V., D’Souza, A., & Barzi, A. (2018). Secondary germline finding in liquid biopsy of a deceased patient; case report and review of the literature. Frontiers in Oncology, 8, 259. https://doi.org/10.3389/fonc.2018.00259
Wolff, J. L., & Roter, D. L. (2008). Hidden in plain sight: Medical visit companions as a resource for vulnerable older adults. Archives of Internal Medicine, 168(13), 1409–1415. https://doi.org/10.1001/ archinte.168.13.1409
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